Take the headache out of doctor appointments!

Caring for a person with PANS/PANDAS is hard enough. Keep medical information and appointment notes in one place.

I’ve been the parent of a PANS/PANDAS child for nearly 20 years. And much of that time was without a real diagnosis. PANS is complicated, and keeping track of everything is important to advocate for your child or yourself. When I couldn’t communicate the correct information, it caused extra stress and delays in treatment.

Having resources on PANS and PANDAS to share with providers, teachers, and family helped us get the care we needed. 

Just want the resources? Click on the home page above to download the resource guide for free.

Each Book Contains

  • Appointment Planner - 4 pages

    A year at a glance to keep track of related appointments.

  • Emergency Contacts - 2 pages

    List anyone who should be contacted first in an emergency.

  • Emergency Planner- 3 pages

    List the provider recommended plan for crisis management.

  • Conditions - 2 pages

    List your diagnoses and conditions. It makes filling out those first appointment intake forms so much easier!

  • Medical Providers - 6 pages

    List all your doctors, with their phone numbers and addresses.

  • Pharmacies - 2 pages

    Your doctor always asks for your pharmacy, address, and phone number. Now you will have it always!

  • Insurance - 4 pages

    You may have more than one insurance policy. List them all for medical, dental, eye, pharmacy, mental health, etc.

  • Medicines - 6 pages

    List your medications/supplements and who prescribed them. This is the master list; update it as you go.

  • Allergy/Reactions - 1 page

    List any allergies or adverse reactions to medicines, and food, and don't forget things like adhesive tape and latex!

  • Appointment - 86 pages

    Room for 43 appointments with 2 pages each. One page to prepare for the appointment and one to write down what happens during the appointment.

  • Notes - 11 pages

    This is where everything else goes. Keep notes for details not covered on another page.

  • Blank Chart - 11 pages

    This is a place for any data you may want to track, like vitals, symptoms, or labs.

  • Appointment Planner - 4 pages

    A year at a glance to keep track of related appointments.

  • Emergency Contacts - 2 pages

    List anyone who should be contacted first in an emergency.

  • Emergency Planner- 3 pages

    List the provider recommended plan for crisis management.

  • Conditions - 2 pages

    Here is where you put your diagnoses and conditions. It makes filling out those first appointment intake forms so much easier!

  • Medical Providers - 6 pages

    List all your doctors, with their phone numbers and addresses.

  • Pharmacies - 2 pages

    Your doctor always asks for your pharmacy, address, and phone number. Now you will have it always!

  • Insurance - 4 pages

    You may have more than one insurance policy. List them all for medical, dental, eye, pharmacy, mental health, etc.

  • Medicines - 6 pages

    List your medications/supplements and who prescribed them. This is the master list; update it as you go.

  • Allergy/Reactions - 1 page

    List any allergies or adverse reactions to medicines, and food, and don't forget things like adhesive tape and latex!

  • Appointment - 86 pages

    Room for 43 appointments with 2 pages each. One page to prepare for the appointment and one to write down what happens during the appointment.

  • Notes - 11 pages

    This is where everything else goes. Keep notes for details not covered on another page.

  • Blank Chart - 11 pages

    This is a place for any data you may want to track, like vitals, symptoms, or labs.

How to take notes for your appointment:

Prepare your questions ahead of time.

No chance of forgetting something during those short appointments.

Rate symptoms.

Track trends with changes of treatments.

Keep an updated list of medications to share with all providers.

Jot down any changes in meds during your appointments. Update the master list for easy sharing with all your providers.

Take accurate notes.

Have an organized place to write down anything you want to remember later. Note any medical terms you want to look up, treatment options mentioned, and test results.

Write down the plan of action.

Make an appointment for a new referral, test, or follow up plan. Pick up new prescription or information that needs to be shared with teachers. This is your TO-DO list. Write down all steps that YOU need to do before the next appointment.

Other titles from The Mighty Tulip

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THANK YOU for taking the time to read all the way to the bottom!

I’ve spent most of my life caring for others. I had to learn to focus on myself and think about what I wanted. Not an easy task for most moms out there! I started to publish books as a fun and creative outlet. Now I am creating tools to help not just myself but anyone who wants to find themselves again. 

Stacy

THANK YOU for taking the time to read all the way to the bottom!

I’ve spent most of my life caring for others. I had to learn to focus on myself and think about what I wanted. Not an easy task for most moms out there! I started to publish books as a fun and creative outlet. Now I am creating tools to help not just myself but anyone who wants to find themselves again. 

Stacy

THANK YOU for taking the time to read all the way to the bottom!

I’ve spent most of my life caring for others. I had to learn to focus on myself and think about what I wanted. Not an easy task for most moms out there! I started to publish books as a fun and creative outlet. Now I am creating tools to help not just myself but anyone who wants to find themselves again. 

Stacy