IVIG Update
So I’m sorry, but it’s been a while since I posted. Funny how this whole PANS/PANDAS thing just changes every aspect of your life and now you have a new normal. Except that my son has had this most of…
Stacy Higginbotham
Finally, IVIG is Approved!
Not sure how it all happened. Honestly, I think it was a fluke. We went through so much to approve the original denial for IVIG to treat my son’s PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder…
Dear Texas PANS Advisory Council:
I stumbled across information last year about the Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council (PANSAC). The council is hosted by the Texas Department of Health and Human Services and has representatives from providers, legislators, community leaders, and parents. Each quarter…
One Step Forward, Two Steps Back
So to catch you up. IVIG was denied. The appeal was denied. So we are still in limbo. I pretty much spent the last two months working on the appeal to send to an external review. I spent so much…
Let’s Talk About Money
One of my big goals is to retire ASAP! Have you heard of the FIRE movement? F – Financial I – Independence R – Retire E – Early I’m not talking about retiring tomorrow although, I think I could handle…
IVIG Denied
I feel like I am forging a path through the jungle. I have my machete, my bug spray, and a treasure map with a big “X” on it. But that’s it. No GPS. No voice telling me to turn left.…
Our PANS and ARFID Story
Note: I don’t use his name because he’s an adult and he prefers to stay anonymous. No worries kid… I got your back. This is the story of my son’s long road to recovery. From what? At the time, I…