If you’re a caregiver, you’ve probably mastered the art of putting everyone else first. You make sure appointments are scheduled, meds are taken, and meals are prepared (and occasionally actually eaten). But in all of this, where do you fit…
So it’s been a hot minute since the last few blog posts. Like a year! Honestly, life is crazy, and things got away from me. But this one is really important. I post and comment in several PANS/PANDAS Facebook groups,…
I recently updated a health record journal that I published almost a year ago. It’s called The Personal Medical Appointment Planner: Be Prepared for Doctor Visits and Emergencies using a Health Record Journal. I have been meaning to get the…
My son was diagnosed with ARFID at 18. But he likely had it since he was a toddler. His pediatrician dismissed it as just being picky and said to just keep putting healthy food in front of him because kids…
As the weather outside gets colder and the days grow shorter, it’s easy to let your self-care routine fall by the wayside. After all, who has time to focus on themselves when there are holiday parties to attend, gifts to…
Once in a while, I’m going to post a review of one of my side hustles since they have the potential to help me pay for this website to continue to advocate for PANS/PANDAS/ARFID and share our story. Today it’s…
PANS and PANDAS are conditions that can be treated by several different types of doctors. If you are wondering what type of doctor to see, the answer is that it depends on the symptoms and severity of the condition. The…
PANS and PANDAS are two acronyms that you may have heard thrown around, but what do they actually mean? What is PANS? PANS is short for Pediatric Acute-onset Neuropsychiatric Syndrome. It’s a disorder that can cause sudden onset of psychiatric…
We all know the drill. You wake up, drag yourself out of bed, shuffle through your morning routine like a zombie, and head off to work. You’re so busy taking care of everyone and everything else that you barely have…
When it comes to taking care of yourself, there are many different ways to do it. Here are six different types of self care that can help parents of special needs families.
As the parent of a special needs child, you know that your plate is always full. There are appointments to attend, therapies to schedule, communication with teachers along with all the normal stuff like work or laundry that seem endless.…
So a few months ago I posted about PANS/PANDAS Progress and ARFID Relapse. So now it looks like we have flip-flopped. He had his last IVIG in June and then went into an eating disorder treatment center in mid-July. He…
I’ve actually had this idea for a book for a while. And last year I finally figured out how to get it published! Today I realized it’s been up on Amazon for a whole year! The title is called CREATE…
So first, it wasn’t until starting THIS blog (I’ve had others on different topics) and getting together all the resources for PANS/PANDAS and ARFID, that I finally considered myself to be a “Special Needs Parent.” My son doesn’t have the…
We’ve been battling two different conditions of PANS and ARFID at the same time. One progresses forward and then the other goes back. Treatment for ARFID is now requiring that he abandon the successful treatment for PANS. So my son…